Since joining the UnChargeables team, I have had many questions asking about my condition… So here is a short boring little blog about what is wrong with me.
I have had endometriosis since age 12, caused by estrogen dominance. I really believe this is the origin of all my health issues from the massive hormone imbalance. Endometriosis causes ovarian cysts, pelvic masses, endometriomas, irregular menses, mood swings/changes, acne, weight changes and migraines.
At age 15, I started getting chronic kidney stones, which I later discovered was from a congenital disorder called Medullary Sponge Kidney. This disorder causes renal cysts, kidney stones and infection. It is extremely painful, every day… I was not diagnosed until 3 months ago but I am SO thankful to finally have answers!
The stress on my body caused me to have adrenal failure, also known as Addison’s disease. My endocrine system was so stressed out that it just stopped working. I make the joke that my adrenal gland’s name is Elvis, and it certainly left the building…… (Hardy har har….puny attempt at humor)
When your endocrine system doesn’t work, it causes a lot of problems. I also have major electrolyte imbalances, zero energy, POTS and some other fun things…
I have had many surgeries. I have had two endometrial excisions to remove pelvic masses, gall bladder removal and an appendectomy.
I will be on steroid medication for life.
I almost lost my life on my 23rd birthday due to an adrenal crisis, which was mistaken for an allergic reaction. But I survived!!
I am writing this not to whine, but to let others know that I do understand what it means to suffer and have to overcome obstacles.
I have had points in my life where I was running an entire retirement home, seeing clients and learning medical school information.
I have also had points where my mother had to help me shower and I could not clothe or feed myself.
The Chronic illness life is one of trial and error, mountains and valleys and revivals and relapses.
It is the life I was given, I will take it day by day.
I am here to help others rebuild their health, as I am constantly sustaining my own.
Below are the links to my published books, I am only sharing them in hopes they will encourage someone. Please don’t think I am here to sell anything, these projects are simply what kept my sane during my time of being completely bedridden. I wanted to share what helped me with others. Writing became my escape.
My fellow chronic illness warriors, please feel free to reach out if you ever need a listening ear.
My email is firstname.lastname@example.org
Wishing you all health, hope and healing!