Hi! I’m a longtime Spoonie. I was born with Common variable immunodeficiency CVID–which means that I don’t have a functioning immune system. It’s so rare that our ribbon is zebra! I’ve been giving myself IGG infusions twice weekly for years.
Related to CVID, I also struggle with Hashimoto’s, asthma, chronic migraines, and ulcerative colitis which is an inflammatory bowel disease (IBD). I have severe anxiety and PTSD. Sixteen surgeries, twelve pneumonias, and countless infections later…I’m still here. Plus, I worked through kidney cancer this year.
But at 36, I fight every day with my teeth clenched and my hackles up. I want to show my sweet daughters that they can choose to be strong, no matter what. And my husband is my biggest encourager–he never lets me forget that I have survived so much, I can certainly make it thru today. I wish that for all of my fellow Spoonies. Isn’t it important to know that we’re not alone?
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