Spoonie Tips Archives - The Unchargeables

September 27, 2020October 16, 2020

How to Make Mindfulness Practical When You’re Chronically Ill

Talk of mindfulness is everywhere. You have no doubt heard people recommending mindfulness as a method of coping with all sorts of health issues. While it’s no ‘quick fix’ or ‘miracle cure’, mindfulness truly can be extremely beneficial for those of us with chronic illness, and it has proven results!

The benefits of mindfulness for chronic illness

Mindfulness is all about being present in the moment, which promotes a sense of calm and relaxation. This alone can provide a feeling of comfort and relief when we’re going through a lot in our lives. This 2019 study defines the practice of mindfulness as: “intentionally observing the body and mind nonreactively while embracing the individual experience and accepting things as they are.”

When you live with chronic illness, you are often in a prolonged state of ‘fight or flight’, which means that your stress response is overworked. Your body and mind are not designed to handle this prolonged stress, which can understandably take its toll. Stress can contribute to chronic pain and other chronic symptoms. Thankfully mindfulness can markedly reduce stress levels, easing chronic symptoms and reducing the negative effects that come with being in a state of stress for so long.

It’s not only stress that mindfulness can help with: regular mindfulness practices can help us to gain greater control over our emotions and enable us to regulate them more effectively. This creates a more stable mood and an enhanced sense of wellbeing. This increased emotional regulation can even help with mental illness (such as anxiety and depression) which so often accompanies chronic illness.

The benefits of mindfulness for chronic illness

Often the experience of living with chronic illness can create a sense of fear of doing something that may worsen your symptoms (which is completely understandable). This fear can lead to fear-fuelled avoidance, meaning we avoid certain activities in the hope we can avoid a ‘flare’. Unfortunately, this fear-fuelled avoidance can actually worsen symptoms over time. Mindfulness can help us to overcome those fears and deal with them in a calmer, more constructive way.

When you live with chronic illness, it can be incredibly hard to sleep. Often even when we do sleep, it’s non-restorative and restless, meaning we don’t feel much of the benefit. Mindfulness can help with more restful, regular sleep. Mindfulness can even help us to be more self-compassionate and build our confidence, as well as helping us to feel more motivated to self-manage our chronic illness.These are only a few of the benefits of mindfulness for chronic illness!

Making mindfulness practical:

Now that you know just how useful mindfulness can be, you might be wondering how to get started. It can be tough to know how to engage in mindfulness in a practical, realistic way. Let’s go through some tips to help you introduce mindfulness into your day to day life.

Figure out what type of mindfulness works for you. There are so many different types of mindfulness such as meditations, visualization and guided imagery, mindful movement, body scan meditations, progressive muscle relaxation (PMR) and more! This variety is great because it means that if you try a style of mindfulness and discover it’s not for you, it doesn’t mean mindfulness can’t work for you! Take your time to do some research and experiment until you find what feels best for you.

Start off with 5 minutes at a time. You don’t have to dedicate lots of time to mindfulness to feel the benefits, especially not when you’re just starting out. Starting out with 5 or 10 minutes at a time can be a sustainable way to introduce mindfulness. You don’t even have to do this every single day to gain the benefits (although if you can this would be fantastic)! 2 or 3 times a week would be a great way to start out. Being as consistent as possible is key. You don’t need any special equipment to get started. Find 5 minutes in a quiet space where you won’t be disturbed or distracted, and you’re ready to go.

Don’t worry about sitting in a specific position. You don’t have to sit with your legs crossed in an upright position for mindfulness to work. Don’t worry if that simply doesn’t work for you. There’s no magic pose that you have do to gain the benefits of mindfulness. Sit or lie down in any position that is comfortable for you.

If you feel pain or other symptoms, don’t overthink it. Let’s face it, it’s likely that while you’re sitting and trying to quiet your mind, you might experience pain or other symptoms of your chronic illness. That’s ok. Don’t worry! Mindfulness is about being present in the moment and engaging your senses. If you are experiencing a symptom, feel what you’re feeling as part of the present moment. Try not to overthink it or worry about it. That sounds easier said than done, but with practice it can get easier. Of course that might not always be possible. If you’re having a flare or a severe symptom, you might need to stop your mindfulness practice for the time being. That’s totally valid too! You can always try again later. It doesn’t mean you’ve failed or that you can’t practice mindfulness.

Find guided mindfulness resources. You don’t have to sit and meditate alone. There are plenty of guided mindfulness sessions online you can access (and many for free!) which will guide you through a meditation step by step. Some people find guided audio or video mindfulness sessions really helpful because it gives them a voice to focus on and clear, relaxing guidance to follow.

Find guided mindfulness resources to help you be mindful.

Consider mindfulness courses and mindfulness therapy. There are mindfulness courses you can engage in which can help guide you through learning mindfulness skills. You may be able to find some in your local area which you could attend in person, or you could find an online course or app. Mindfulness is often integrated into other types of therapy to treat chronic illness and mental health issues. You could ask your doctor, specialist or therapist if this is something you could involve in your sessions. Alternatively, you could seek a specific mindfulness therapist. If you do so, ensure they are properly qualified

Utilize mindfulness in bed to help you sleep. If you struggle to sleep, you could practice mindfulness a little while before you go to bed at night to get you in a relaxed mood. Another great way to utilize mindfulness to help you sleep is to listen to a guided mindfulness session in bed to help you drift off. Progressive muscle relaxation (PMR) is really great for this purpose because it takes you through relaxing each area of the muscles in your body. This can ease muscle pain as well as encourage relaxation.

Consider trying mindful movement. For some people, sitting or lying still and trying to relax simply doesn’t work. This is where mindful movement can come into its own. Mindful movement typically involves slow flowing movements. While you’re doing these movements you pay attention to your breathing, to how your body feels and to what is happening in that moment. Yoga and tai chi are types of mindful movement. You can even make other exercises mindful, such as going for a mindful walk. When you’re walking, you might pay attention to how your feet feel as they are hitting the ground. You may notice what sounds you can hear and what you can see around you for example. You’re focusing on exactly what is happening in that moment on your walk, not on the past or the future. Mindful movement brings all of the same benefits of mindfulness, as well as incorporating the benefits of exercise and activity for those with chronic pain. It’s all about what works for you!

Make daily tasks mindful. We don’t always have the time or energy required to dedicate to setting aside specific time for mindfulness each day. However, as you learn the skills of mindfulness, you can make daily tasks mindful that you would be doing anyway. As we learn to pay attention to what is happening in the moment, (if our mind wanders we simply bring our attention back to the present) we are being mindful. Over time this can become a positive habit, and will feel less like a conscious effort. This study explains that, “repetitive attempts to increase state mindfulness leads to an incremental escalation of the general tendency to be mindful in a more automatic manner.”

An example of doing daily tasks mindfully could be eating a meal mindfully. Take your time to focus on how your food smells and looks before you eat it. As you taste it, take the time to really take notice of the flavours, the movement of your mouth and tongue, and the feeling of enjoyment you may experience. You could make taking a shower mindful. Pay attention to how the water feels on your skin. Take notice of the smells of your shower gel or soap. Think about what colours you can see (maybe the bottles in your shower or your sponges are a certain colour).

Be kind to and encourage yourself. If things don’t go to plan, for example if you can’t quiet your mind or you miss a week of your mindfulness practice, don’t be too hard on yourself! It doesn’t have to be perfect. Remember you’re learning a skill and that takes time. Encourage yourself and be kind to yourself. If you try all sorts of different mindfulness techniques and are just finding that it’s not for you, that’s completely valid too. There are plenty of other chronic illness management options that you can explore. It doesn’t mean you can’t try mindfulness again later down the line if you want to, so don’t worry!

Mindfulness is about you!

Fundamentally, mindfulness is about what works for you. If you can find ways to integrate mindfulness into your life, it can be well worth the effort and have wonderful benefits. Remember that there’s no specific ‘right way’ to practice mindfulness. It’s all about what works for you and your life.

About the Author:

Ann-Marie D’Arcy-Sharpe is 33 years old and works as a freelance writer and blogger. She lives with bipolar disorder, fibromyalgia and arthritis. She writes for Pathways Pain Relief, a chronic pain relief app and blog. The app is created by pain patients and backed by the latest pain science. The app uses mind body therapies to help pain patients achieve natural, long lasting pain relief.

July 18, 2020July 7, 2020

How Watching ‘Perks of Being a Wallflower’ Got Me Through Depression

Warning: This article discusses mental illness and thoughts of self-harm.

Like many people, I’ve always enjoyed watching films. Films tell us a story about someone’s life and struggles and shows us how they were able to overcome those obstacles that they had to face. About a year and a half ago, I had gone through a rough patch in life where I didn’t know where to turn to. I was going through college and my first real break up, along with knowing that I was going to have to live with Cerebral palsy for the rest of my life.

I didn’t know where to turn to as nothing I did seemed to help me cope with the many different emotions that I was facing at the time. Then a friend recommended that I watch ‘Perks of Being a Wallflower’ which is about a high school freshman named Charlie who’s an aspiring writer who loved journaling about his everyday life but has a difficult time handling depression.

How Watching 'Perks of Being a Wallflower' Got Me Through Life Changes

My connection with the main character:

From the minute I first saw Charlie on my screen I automatically connected with him and what he was going through as someone who was at that point in her life where everything felt very confusing. I had thought that I had everything figured out and I was now adapting to changes at the time that changed my outlook on life.

While watching ‘Perks of Being a Wallflower’ I felt as if I was Charlie in the movement, and he was speaking to me directly. I related to him as he was going through being the outcast of his fellow classmates because he was the one who was not ordinarily. This is just like myself since I have Cerebral palsy and use a wheelchair as my legs. So, I tend to be the outcast of society.

My connection with the main character of 'Perks of Being a Wallflower'

At times this could all be too much for me to handle. Watching ‘Perks of Being a Wallflower’ allowed me to be confident in my life and the person that I am, as well as the life story I have to tell.

How what this movie taught me applies to my life:

‘Perks of Being a Wallflower’ reminds me that despite the bad chapters in my book I have to keep writing my life story no matter how bad the chapters are. It reminds me that it’s just one bad chapter, it’s not my whole life story. And just like Charlie overcame his obstacles and challenges of being an outcast with very little confidence, I am reminded that I’m not alone and I will overcome anything that comes my way.

How what 'Perks of Being a Wallflower' taught me applies to my life

Watching ‘Perks of Being a Wallflower’ also helps me forget about the lack of mobility I have on the left side of my body due to Cerebral palsy, which can lead me to feel suicidal at times and feel trapped within my own mind and body.

Watching this film takes away any negative thoughts I might have about myself and my abilities and helps me to continue living my life as a disabled woman with Cerebral palsy. I will be forever grateful for ‘Perks of Being a Wallflower’ and its message.

Tylia Flores is a 24-year-old born with cerebral palsy. Although her condition has affected her mobility, it has never affected her will and determination to make a difference in the world. Through her many life challenges and obstacles, she discovered her passion for writing. Tylia’s goal in life is to share her stories with the world.

July 11, 2020July 5, 2020

Why Does Our Culture React So Negatively to Disability Activism?

Disclaimer: This article is written from my perspective as a young, disabled adult that lives in New Zealand. Whenever I mention “culture” in this article I am referring to western culture, specifically western culture as adapted to by New Zealand. I haven’t done much traveling so I can’t say if other countries with similar cultures react the same way, however, I have seen accounts of similar experiences from activists worldwide.

This is also my experience as someone with an invisible disability. I’m sure that everyone’s experience is different, and some of the readers of this article may not relate to what I have written no matter where they live. This is awesome because we all have our own unique story. I make a lot of generalisations in this article, and those generalisations certainly don’t apply to everyone. I am just expressing my experience in the best way I can.

I have experienced widespread chronic pain since the age of seven. I went from being a relatively “normal” (if accident-prone) girl to experiencing severe pain every day of my life. Slowly my condition deteriorated until I required the use of walking aids for a large chunk of my life (and I still do). I went through years of bullying and what I can only consider being “medical abuse” (mistreatment from medical professionals; such as being called a faker and being forced to take medication that caused severe side effects), which almost broke me.

As I grew into my voice I decided that I would be an advocate; not only for myself but for everyone with similar experiences to mine. I started with the basics: social media. Whenever I noticed an injustice towards people with disabilities, whether it be against me directly or against someone else, I would speak out. I then started writing articles about my experiences, which I love. And now, I’m a part of a panel run by the local Ministry of Education aimed at making education more inclusive to disabled students. This is just the beginning of my advocacy journey, and I can’t wait to see where it leads me in the future.

Throughout my advocacy efforts, I have noticed that many people on social media bristle when advocates like me bring up serious issues addressing the disabled community. I have been dismissed, insulted, and verbally abused online by people who will do anything to defend injustices against vulnerable people. I decided recently that I wanted to analyse their viewpoint and understand why, so I thought the perfect way to do this would be to write out my analysis and my thoughts in article format so I can share it with you all. This article addresses the question featured in the title: Why does our culture react so negatively to disability activism?

Ableist preconceptions that exist culturally regarding disability:

When we take a deep look at how the topic of disabilities is covered in the media, it is actually quite shocking. For example, I have an issue with the tv show called “The Undateables”, which is a dating show about people with disabilities finding love. While I believe that disabled people (including myself) should have the opportunity to find love just like everyone else and appreciate the representation this show provides, I don’t support that show because of the title’s connotation and denotation. Using the term “undateable” to describe an entire group of people is downright insulting. You’d never see a media organisation calling someone who’s from any other minority group (but who is not disabled) “undateable”.

I am not “undateable”. My brothers are not “undateable”. My friends are not “undateable”. No person should be labelled “undateable” for something they can not control. This is just one example of society’s ingrained ableism that many people are blind to.

We’re to be pitied, but not listened to. This is another ableist preconception I’ve witnessed. Often disabled people are portrayed to be these pitied, helpless beings who need charity, not a voice. We must be passive to maintain this image otherwise we are labelled as “trolls” or “entitled”. I’ve been told that if I can walk and/or articulate then I’m not disabled enough to complain about facing injustices. That is so incredibly wrong, especially since if people like us who can speak up don’t, then who will?

Ableist preconceptions that exist culturally regarding disability

I’ve also been told that I should stop using my disability “as my personality” when I responded to a post on social media. Actually, I’ve been told this multiple times. That is one of the most ableist things I have heard to date. I’m sorry that I can’t “turn off” my disability. I experience pain every single second of my life. It impacts my ability to sleep, my ability to sit, my ability to stand, my ability to walk, my ability to work, my ability to study, and my ability to socialise. Am I supposed to forget that? Not only that, but why shouldn’t I fight for injustices against people with disabilities to end?

Invisible disabilities make people uncomfortable:

Many people feel like they have to see something to believe it, which is fine until you start talking about invisible illnesses and disabilities. If I’m not using my cane, you couldn’t tell I’m disabled just by looking at me. And yet, my disability impacts all aspects of my life, whether I’m using my cane or not. Many times I have had people accuse me of faking my disability on my activism posts, telling me that I don’t “look” disabled and that I’m just “lazy”. I’ve had to grow up listening to this from my peers throughout my childhood so it doesn’t bother me as much as it used to. I’ve become desensitised. However, this behaviour needs to be addressed, because next time it could be said to someone who is not experienced dealing with this kind of harassment.

The disability rights movement isn’t as “trendy” as other human rights movements:

This point may be a bit controversial, however, I think it’s important to talk about. As a disclaimer, I’m not trying to tear other movements down to lift up disability awareness, I am simply comparing current cultural awareness and coverage of different movements in the mainstream media. I am not trying to say that either of the movements I compare disability activism to below deserve less attention, because I believe they deserve all the coverage they are getting, if not more. I also believe that the disability awareness movement should have just as much coverage as these movements so that they’re all at an equal platform.

LGBTQIA+ pride, for example. We have pride parades and Pride Month, events dedicated to raising awareness about discrimination against people within the LGBTQIA+ community, and LGBTQIA+ merchandise specifically aimed at raising awareness and money for charities that support this goal, which is a great cause. Companies change their logos or advertising media to reflect these events to show their solidarity, which is amazing. There are even multiple public spaces in my country that have been painted rainbow to celebrate Pride, such as town squares and selected zebra crossings. Feminism is another example. We have the women’s march, international women’s day, feminist merchandise, and a tonne of events targeted at raising awareness about discrimination against women. Both of these movements are prominent in pop culture and get a large amount of media coverage, as they should.

The disability rights movement isn't as "trendy" as other human rights movements

I just wish we could see the same effort go into raising awareness about discrimination against people within the disability community, as well as a similar amount of media coverage of these efforts. Where are the disability awareness parades? In my country, there are none. There are disability awareness days, however, I have yet to see the mainstream media address them. The inequities of identity awareness in our culture is definitely an interesting topic to think about.

Disability activism is not “convenient”

Part of disability activism is confronting people who are taking advantage of disabled people just to make their own lives more convenient. For example, calling out people who park in disabled parks without a permit, or sharing public service announcements about misuse of disabled toilets. When I mention the misuse of disabled toilets, I don’t mean them being used by someone with an invisible disability. People with invisible disabilities have as much right to use the disabled toilet as every other disabled person. When I mention the misuse of disabled toilets I’m talking about the people who have no impairment what-so-ever (or aren’t assisting someone with an impairment) who just use the disabled toilet just because it’s there.

I have witnessed people without disability parking permits parking in disability parking many times. When called out on it, their response is often “I’ll just be a few minutes.” That is one of the most common responses, along with resorting to verbal abuse when someone mentions their lack of a permit. I have made posts about these occurrences on my town bulletin Facebook pages, and every single time I have received abuse from people who see no issue with parking in one of these parks without a permit. I get told that I’m entitled, even though I paid for my permit to use those parks, while the abusers that park there don’t. How am I entitled for asking to use a service that I pay for?

Privileged people who lack empathy don’t like having their privileges, even the privileges that aren’t rightfully theirs to begin with, taken away.

There’s also the issue of inaccessible public spaces or stores. Renovating an area to ensure it is accessible by everyone may not be cheap, but it is necessary. Calling out local businesses that exclude disabled people from their stores and spaces is extremely important.

Disability activism is not “convenient” especially when it addresses the misuse of disability parking and disability toilets

During my advocacy journey (despite it being a short one at this point, I only started about 4 years ago) I have faced a lot of feedback. Some of it good, some of it bad, most of it respectful. However, I have also faced a lot of abuse, mostly online, for standing up for what I believe in. Sometimes, for a brief moment, I consider giving up, but then I remember the people that have thanked me for speaking out. This article is dedicated to them. I long for a day when disability activism is no longer controversial, and people no longer have to fight for their voices to be heard.

Amy Clements is a 20-year-old who has lived with chronic pain, the result of Fibromyalgia, since childhood. In her teens she was diagnosed with Complex Regional Pain Syndrome in her wrist, which was the result of a netball injury. Amy lives in New Zealand and studies Business part-time at University. She enjoys reading novels and writing. She especially enjoys writing about her experience with chronic illness.

July 4, 2020July 2, 2020

Marie’s Chronic Illness Journey: Finding My “New Normal”

Marie’s Chronic Illness Journey: IBD and Crohn's disease

IBD, Perianal Crohn’s Disease, Abscess, Fistula complications, Sepsis, Crohn’s Arthritis, Pyoderma Gangrenous, DVT, blood clotting disorder, low blood pressure, Tachycardia and an irregular heartbeat with palpitations, Migraines, Body Dysmorphia, Depression, Anxiety, Agoraphobia, PTSD, hair loss, insomnia, self-isolation.

No, you didn’t just read a list of side effects from a newly FDA approved medicine. What you did read are just some of the things I have to battle with and continue to overcome daily. It’s unfortunate, but I can continue on with that list for quite a while. Being diagnosed with a chronic illness at 27 is utterly perplexing, as I am sure it is at any age. You live this life and you have your plans, goals, aspirations, and, at the flip of a switch, that all changes. I was completely blindsided and continue to be with every new diagnosis.

Finding my “new normal”

Once I was diagnosed, I would hear from other IBD patients and medical professionals about the importance of finding your “new normal”; a phrase I found to be so true and necessary, as I myself was discovering what that would mean for me. My struggle came into play when I realized no one around me seemed all that open about the process that preceded this new life I would be creating for myself. With the daily challenges associated with chronic illness, figuring out how this new life looks can feel as if you’re driving at night in a rainstorm, with your headlights off, just praying you’re on the right side of the road.

I had never really been exposed to the chronic illness lifestyle. Even though it has now been 2 years, the chronic part is still something I struggle with regularly. It’s easy to forget that this illness is for life. It definitely doesn’t help when the “able” ask you if you’re better yet. Especially, when after every procedure, that thought passes through your own mind, only to disappoint you again because you know that “better” will never be a permanent option.

I was beyond lost at the beginning of my chronic illness journey. I was scared and I felt alone. I was the only one in my world who could speak my language and everyone was staring at me like I was a circus clown. As if the chronic pain wasn’t enough, I was now facing emotional turmoil as friends, who I considered family, began to drop out of my life. I was left to fend for myself the same instant everything I knew changed; with only a few true friends remaining by my side to help navigate the most difficult challenges I’ve ever faced. True colors began to shine in moments of crisis and I was seeing rainbows.

Highly medicated and awkwardly positioned in my hospital bed, I felt as if I was being tested. I can only describe my time in my post-op, shared-room as a character-building experience. I squinted one eye shut to combat the drug-induced, kaleidoscope vision so I could begin to research how to achieve this “new normal”.

Finding support

I stumbled across the Crohn’s and Colitis Foundation and sent them an email. Once discharged from the hospital and successfully escaping the grips of my home nurse, I managed to make it out to a few events. I started meeting people, people like me, only they were more informed and experienced with their place in their chronic illness journey. It was through these gatherings that I became connected with my mentor, who now is my closest and dearest friend.

We began going to support groups together and she got me to see a psychologist who specialized in IBD. I had a connection with my mentor-turned-best-friend that I’ve never experienced before. I wasn’t aware that relationships like that were real. I finally wasn’t alone on my planet where no one could figure out what I was saying. I was the least lonely I had ever been, and we were in our very own world where we finished each other’s sentences, showed up for surgeries, and answered the phone late at night just because the other couldn’t sleep. We support each other in every aspect of our lives and I slowly began to realize the steps needed to be taken to get to my “new normal”.

It was through our relationship and her perpetual support that she encouraged me to stop hiding behind my fears and do what I love. Out of this came The Lemon Blog, my passion project. The Lemon Blog is a place that supports all abilities and provides encouragement, mentorship, community, advice, an ear to listen, or even a shoulder to cry on when needed.

Starting a blog when coping with IBD and Crohn's disease

I cannot stress enough the importance of having a solid support system. Sadly, not everyone has that available to them, which is why The Lemon Blog has become so important to me. Not only have I made amazing connections with these warriors, but we check on each other regularly, we cheer each other on, offer support when needed, words of encouragement when down, and have some pretty good laughs along the way.

People like Meena at The Unchargables help pave the way for the rest of us and I am honored to be writing this for their site. Thank you for asking me to share my story. I encourage everyone to share their own; you never know who it may help. I’d love to see you over at thelemonblog.com or shoot me a direct message through our Instagram @the.lemon.blog – we’d love to have you be a part of our Spoonie Community and help you to discover you own New Normal.

About the Author:

Marie is a chronic illness warrior who runs The Lemon Blog, which is her passion project. Marie created this blog with the aim of supporting fellow chronic warriors and helping them find their own “new normal”.

April 18, 2020April 15, 2020

The Best Foods That Help Manage Eczema

Eczema is a skin condition that primarily affects infants and children. It is a type of dermatitis which could be chronic or sometimes relapsing. Eczema is skin inflammation that can cause itchiness, redness, swelling, and pain, and can range from mild to severe. Although the exact cause is unknown, overactive immune systems are known to be responsible for eczema. However, it can also be genetic. Asthma and hay fever can also cause eczema. Other skin disorders or disease, infections, or loss of moisture are also known to trigger eczema.

The skin of children is more sensitive than adults, and children are more likely to be exposed to irritants as they drool, touch, and play with stuff that could have irritants on them. This makes children more prone to being affected by eczema.

The types of ezcema:

Contact dermatitis is caused when the skin comes into contact with the substances that harm the skin or set off allergies. The common triggers of this skin reaction are soaps, cosmetics, perfumes, and jewelry. Contact dermatitis can lead to infection if the area is repeatedly scratched and the area starts to ooze. This becomes a good place for bacteria and fungi to grow.

Dyshidrotic eczema causes blisters to form on your feet or hands. These blisters are itchy and can be filled with fluid. High-stress levels, allergies, excessive sweating, and staying for too long in water are the common causes of dyshidrotic eczema.

Exposure to allergens such as pollen can impact eczema

Nummular eczema manifests as circular spots or patches that form on the skin as a result of an injury, burn, or insect bites. These spots are often itchy and can be well defined. Nummular eczema is more common in adult men in their later ages, however, women in their middle ages also are at risk of developing it.

Seborrheic dermatitis generally occurs on the scalp, face, and chest. The common symptoms of this condition are scaly skin, red patches, and sometimes it could also appear in the form of dandruff on the scalp. Mild shampoos are generally recommended for treating this condition on the scalp.

Stasis dermatitis generally occurs when the blood circulation in veins is disrupted, and the blood leaks out of the vessels and into the skin. The most commonly affected areas are the legs. Swelling, dryness, and scaly texture are the common symptoms of stasis dermatitis. The condition is more common in women and adults who are in their fifties.

Foods that help manage eczema:

There are various natural remedies for eczema. Foods such as bananas, berries, salmon fish, sauerkraut juice, turmeric, lemonade, whole grains, probiotics, etc., can play a significant role in treating eczema naturally.

Beetroot is one of the highly recommended foods for managing eczema, it is said to boost liver detoxification and remove harmful chemicals that could trigger eczema. They are also one of the excellent purifiers of blood which promotes healthy skin. Vitamin C in beetroot can help in clearing skin blemishes caused by eczema.

Celery is filled with electrolytes and essential vitamins such as vitamin K and vitamin C, which are highly essential for promoting skin health. It is also a rich antioxidant that detoxifies the liver, which in turn can help improve the condition of eczema. Celery juice can also help in treating acne and psoriasis.

Salmon is rich in omega-3 fatty acids, which can help fight inflammation related to eczema and other health conditions. It is also loaded with essential nutrients such as vitamin B and selenium, which protects and improves the overall condition of the skin. The other vital components of salmon fish also strengthen the immune system, which boosts the body’s natural ability to fight eczema from the inside.

Salmon helps fight inflammation and may help treat eczema

Turmeric is one of the oldest remedies used in treating eczema and other skin disorders. The anti-inflammatory and antioxidant properties of turmeric reduce inflammation and help protect the skin from eczema. The natural antiseptic properties also inhibit any infections from eczema. Turmeric can help decrease blemishes, redness, and sooth the skin.

Probiotics. Foods containing probiotics or probiotic supplements contain good bacteria that are said to ease the symptoms of eczema. Probiotics also enrich the immune system, which could have been disrupted when the person is affected by eczema. Probiotics are also known to reduce inflammation, which is one of the symptoms of eczema. Yogurt is one of the best sources of probiotics.

Bananas are rich in vitamin A, which plays a vital role in moisturizing the skin and preventing dryness. Bananas are also loaded with essential fat that is used in many lotions that are used in treating eczema. Potassium in bananas also helps in soothing the effects of eczema.

Food can be used as a natural remedy in many other ways too, such as to treat conditions such as chronic diarrhea.

Foods to avoid:

While some foods can help manage the symptoms of eczema, others can trigger eczema and make it worse.

Listed below are some of the foods to avoid:

Broccoli
Dried fruits
Citrus fruits
Gluten or wheat
Spices
Tomatoes

While a healthy diet and lifestyle are vital in managing eczema, getting a proper diagnosis and treatment from a doctor is highly recommended. Especially when it comes to children, parents should not rely only on natural remedies to treat eczema. It could make the conditions worse. Natural remedies should only be used under a doctor’s supervision.

About the author:

Emylee is a wellness lifestyle writer. She loves sharing her thoughts and personal experiences related to natural remedies, yoga, and fitness through her writing. She currently writes for How To Cure. She can connect with others experiencing health concerns and help them through their recovery journeys through natural remedies.

April 4, 2020March 29, 2020

My 7 Steps For Coping With a Chronic Condition

Being diagnosed with a terminal or chronic illness can be disorienting and disappointing. But as you accept it with time, you will learn to cope with your illness by making changes in your lifestyle. Stress affects everybody, and suffering from long term health conditions may make you vulnerable to the struggles stress can bring. You may appear to be absolutely fine on the outside, but inside, you might be torn apart by the stresses of being constantly dependent on someone for doctor appointments or having to clean up, go outside, run errands, etc. To persevere the spirit to live must be there. No matter what you are suffering from, being aware of the conditions and taking precautions can ease the everyday struggle. The more positively you can handle the struggle, the easier it will be to take care of the challenges.

My 7 ways to cope with a chronic condition:

Acceptance:

Often a lot of turmoil lies in mind. Accepting being terminally ill or having to suffer from a lifelong condition such as diabetes or thyroid issues takes time for acceptance. Once you’ve accepted it, it puts your mind at ease and allows you to look for ways to combat the disease while living your life. Take your time but accept your current situation as that is only when the mind will start to look for a solution.

Look for support:

We all need people that support us when we go through a tough time, and when experiencing illness, having a strong support system is half of the journey. Having your friends and family with you during these times can boost up your confidence. Do not worry about the toxic relationships in your life and only focus on people who add positivity to your life. Value the people who love and care about you and make them a part of your inner circle. Social media is also a great place to get support from those experiencing similar conditions to you.

Gain more information about your condition:

When you are suffering from a chronic condition, it is always safer to have a thorough understanding of the disease and its conditions. If you have doubts and questions, don’t hesitate to ask your doctor. You may also research online or look for support groups to gain more knowledge about the condition. Keep track of the symptoms your body exhibits and get to know your body better. Analyze methods that may help to manage symptoms related to your condition and share details with your healthcare provider.

Manage symptoms of depression:

People suffering from chronic illness go through a wide range of emotions. You may feel weary, drained out, and be in a dark place due to the condition and the symptoms you experience. A lot of people miss out on their regular doctor’s appointments and skip medications, which ends up in further aggravating the condition. It is important to be well informed about the symptoms of depression and how to tackle them. Speak to a therapist if necessary.

Take your medications on schedule:

It is often hard to remember to take medication, it’s even harder to remember if you have to take 10 of them. Set a reminder or an alarm on your phone to remind you to take your medicines on time. Remember the names of the medicines you are taking and get a deeper insight into the drugs you are recommended. Speak to your doctor to learn more about each drug and its side effects, why you’re taking them, if you may discontinue them in the future, etc.

Live in the present:

Suffering from a lifelong disease can make you worry and fear the future, but the best way to live one’s life is to focus on the present. Always follow the rule of ‘Be Here And Now.’ Focus on what you’re doing; if you are eating, be conscious of what you’re eating, what color food you are eating, etc. It keeps the mind focused on the present activity and prevents it from wandering off in unprecedented directions.

Find something you love to do:

Practicing a hobby is therapy in itself. Whether it’s painting, gardening, or reading a book, find out what you like and do it. Hobbies can bring joy, a feeling of productivity, and a distraction from the suffering of real life.

Coping with a chronic illness can be difficult, but there are methods that can make this easier. Live in the moment and take baby steps every day. Changes don’t happen overnight, but as long as you make progress, you’re doing great.

About the Author:

Henna is a wellness lifestyle writer. She loves sharing her thoughts and personal experiences related to natural remedies, Ayurvedic, yoga and fitness through her writing. She currently writes for How To Cure. She can connect with others experiencing health concerns and help them through their recovery journeys through natural remedies.

March 30, 2020March 30, 2020

What Cerebral palsy awareness month means to me (March 2020)

March is Cerebral palsy awareness month, which is dedicated to the 17 million people diagnosed with Cerebral palsy around the world.

I first got diagnosed with Cerebral palsy at the age of 2 years old. Growing up with a condition like Cerebral palsy wasn’t the easiest task and I had many obstacles to face. But I overcame those and now I’m able to share how I’ve overcome the hurdles in my life. These are hurdles that I thought where huge at the time. I can now share my journey through my advocacy work and the stories that I’ve written.

Why Cerebral palsy awareness is important

Getting the chance to spread awareness for Cerebral palsy for a full month is awesome, though I celebrate Cerebral palsy Awareness 365 days a year. While every day is a great day to spread awareness, March is definitely a month that I look forward to because it gives me a chance to educate people more about my condition. I like to share my experiences about what it’s like to live in a world that you constantly have to adapt to, since not everything is accessible to you as a person with Cerebral palsy.

For example, sometimes when I go to store with my mom, we tend to get people who stare and point at me like I’m E.T.. It feels like I landed on earth and befriended a boy named Elliott. Meanwhile, I’m just an average 24-year-old that uses a wheelchair and has a passionate, creative mind that I tend to use for my stories that I have to tell. I’m not any different from anyone else and I just want to be accepted in society as I am and not as anything different. Cerebral palsy awareness month allows me to bring awareness to that.

Cerebral palsy Awareness month also gives me a chance to reflect on how far I’ve come in my life with Cerebral palsy. I get to look at all the milestones I’ve reached, as well the ones I will continue to reach as my journey with Cerebral palsy continues. I love to look back at the stories that have been written by me and the people I’ve been impacted by, such as many of my friends who are also advocating for Cerebral palsy awareness. We’re all in this together and nothing could break that bond between us all.

I’m not fighting for a cure, I’m fighting for awareness

Cerebral palsy is the most common childhood disability, yet I feel that there’s very little awareness about the condition in comparison to other disabilities (such as Autism). I’m constantly reminded of the lack of awareness as I wheel around in society and don’t see one touch of green in honor of Cerebral palsy awareness in March, instead of just for St. Patrick’s Day.

I'm not fighting for a cure for Cerebral palsy, I'm fighting for awareness

My advocacy is not about finding a cure for me, it’s about spreading awareness to the people that are unaware of Cerebral palsy and what it is truly like to live with this condition. People seem to think it goes away when your childhood is over, when really childhood is just the beginning of the difficult journey of living your life with Cerebral palsy. In my opinion adulthood is the hardest part because you have to navigate through life and it’s difficult, but having a month that brings awareness to this struggle is awesome.

About the Author:

March 27, 2020March 29, 2020

Hyperhidrosis and The Realities of Living with Excessive Sweating

Living with hyperhidrosis can be challenging. The contents of this article may seem like too much personal information about bodily functions for some people, however, I feel that hyperhidrosis is something that is not talked about a lot in the chronic illness community. We need to delve into the TMI (too much information) realm to discuss it.

I used to think that I was a gross freak of nature for sweating so much, but after connecting with other people who experience a similar thing I realized that it is more common than I thought.

What is hyperhidrosis?

Hyperhidrosis is abnormally excessive sweating that is not always related to heat or exercise. Someone with hyperhidrosis may sweat so much that it soaks their clothes and drips down their face and hands. People normally sweat when they exercise, are hot, are anxious or under stress. The sweat that accompanies hyperhidrosis far exceeds this normal level of sweating. Hyperhidrosis can also be made worse by factors such as heat, exercise, sweat, stress or anxiety.

Primary Focal (Essential) Hyperhidrosis

The most common form of hyperhidrosis is primary focal (essential) hyperhidrosis. This occurs when the nerves responsible for signalling your sweat glands malfunction and become overactive. This type of hyperhidrosis usually affects the palms of your hands, the soles of your feet, and in some cases your face. There is no determined cause for this type of hyperhidrosis, however, it may be hereditary as it runs in families.

Secondary Hyperhidrosis

Secondary hyperhidrosis occurs when it is a symptom of another medical issue. It is more likely to cause widespread excessive sweating than primary hyperhidrosis. Conditions that may result in excessive sweating can include:

Thyroid issues
Diabetes
Infections
Some types of cancer
Heart issues
Nervous system disorders

Some medications can also cause excessive sweating.

Experiencing Fibromyalgia with Hyperhidrosis

My secondary hyperhidrosis is caused by my severe fibromyalgia, which is a central nervous system disorder. While some of the medications can cause secondary hyperhidrosis, my experiences with excessive sweating began in childhood, long before I started taking these specific medications, but after I started suffering from chronic pain.

Of course, weight can impact how much you sweat, and I am overweight. However, as said above, I have been experiencing this excessive sweating since before I was even a teenager, and I weighed nothing close then to what I weigh now.

How Hyperhidrosis Impacts Social Situations

Work: If your job is in any way stressful and you deal with hyperhidrosis, you may find you sweat a lot at work. If you work around others, such as in a customer relations role or in the office, the excess sweating may make you anxious about how others may perceive you. This anxiety may impact your productivity if it becomes severe. Hyperhidrosis may also impact your opportunity of gaining new employment if it becomes problematic during job interviews. Since sweating is usually a sign of anxiety, even the calmest person with hyperhidrosis may look extremely anxious to the interviewer. This could have a severe impact as to whether you are chosen for the job. Shaking hands can also be a source of anxiety particularly if you have primary focal hyperhidrosis which causes sweaty palms.

Night clubs: As a young adult, every once in awhile I like to go to a night club and dance with my friends. Even though I find this extremely draining, I like to experience just a few hours of normality. Many nightclubs are crowded and warm. Hello Extreme Flare! It can be difficult to enjoy myself knowing that I have sweat visibly dripping down my face. This can also impact my chances of meeting new people and starting new relationships. , The excessive sweating may cause people to judge me before they get to know me. This is definitely a disadvantage for the single girl like me.

Any social occasion: Hyperhidrosis can impact any situation. Going to a café, a theme park, the beach, the movies and attending school are all different for a person that has to consider excessive sweat. Hyperhidrosis and extra sweating can become a source of anxiety at any time, but when it’s flaring especially when it’s flaring.

Tips and Tricks for Coping With Hyperhidrosis and Excessive Sweating

Now that I’ve listed the ways hyperhidrosis may negatively impact social situations, I will now tell you my tips and tricks for coping with hyperhidrosis and living with excessive sweating that I have developed throughout my own experience.

Waterproof Makeup

The facial sweating that is the result if hyperhidrosis can ruin any makeup you may be wearing. I personally love wearing makeup every once in a while for nights out or on a day I feel like dressing up. Unfortunately, if I’m not careful with what products I use my makeup can end up dripping down my face. Utilizing a good primer and a waterproof foundation and concealer are a good start. Make sure your mascara and eyeliner is waterproof if you enjoy using those products. You can even find inexpensive brands at your local retailer and online. Many brands meet these suggestions.

Dressing in Light Layers

Very many people live in a place where the weather can go from cold to hot within a few hours. Dressing in light layers is the way to go. If you also suffer from temperature control issues spring layering is good strategy for you, too. Utilize cardigans because not only are they light but they also don’t take up too much room in a bag while out and about. If it is chilly in the morning wear a t-shirt and a cardigan over top. It is easy to take take it off later on in the day.

Portable Fans

This may seem a bit extreme, but if you’re prone to over-heating on a regular basis like I am, a portable fan can be invaluable. I got one for $8 from The Warehouse, and I love it. It’s rechargeable by USB and has multiple levels of intensity. This would be perfect for days at university during summer, long days of traveling, or days when you’re spending a lot of time outside in the heat.

Apply Multiple Layers of Antiperspirant

With secondary hyperhidrosis the sweat under your arms can become excessive and can be very hard to manage. Recently I have started using multiple layers of antiperspirant using two different types and I find this helps well for summer. I use a cream antiperspirant under my arms first and then a spray antiperspirant on top. While this does not completely stop underarm hyperhidrosis it does make it more manageable. There are some more aggressive options you may discuss with your health provider in some places.

Body Wipes and Shower-less Body Wash

If you have hyperhidrosis and live with excessive sweating in addition to chronic illness then managing your hygiene can be very difficult. Bathing, for example, can be very difficult for those who experience symptoms such as chronic pain and fatigue. Some days many Chargie’s do not have the energy to shower. Other days I may end up perspiring a lot requiring multiple showers. In these cases it is convenient to use deodorant body wipes or shower-less body wash. Deodorant wipes are targeted especially at lessening odor. Shower-less body wash can be used without washing it off and do the same thing.

Many people like to use baby wipes in the place of deodorant body wipes. I find that baby wipes don’t work very well in comparison. Products specifically targeted at killing sweat caused germs and odor do a much better job, and I find that body wipes are more moist with product, therefore you end up using less wipes.

When you experience hyperhidrosis and living with excessive sweating it can feel very isolating. However, there are things you can do that make coping with it a bit easier. It was also helpful for me to learn that isn’t something that I go through alone. Surrounding yourself will people who understand your condition can also make a huge difference. Having a non-judgmental environment can become your social safe space. I know that when I start sweating excessively my close friends won’t judge me for it. Therefore I never become anxious about it around them.

March 17, 2020March 16, 2020

Tips from fellow Chargies during these stressful times

Another article about coronavirus? Yes, but this is a good one.

We have asked our community members: ” Coronavirus is on top of everyone’s mind. What tips would you give your fellow Chargies during these stressful times? “

Here’s what they said.

Don’t panic!

1. Don’t panic. It is more likely we will catch the Flu, Strep or Stomach virus before CONVID-19.

2. Take things such as Vitamin C or Eldenberry (if you can) gummies to help immune systems.

3. Drink plenty of water to keep hydrated.

4. Wash your hands, we all do it anyways. Use hand sanitizer and if you feel like you need to, wear a mask.

5. If you have any symptoms contact your doctor or go to the ER ASAP.

6. Protect your mental health. Stay off the new media sites, turn your TV off if you need to, stay off social media if you need to as well. Protecting your mental health is just as important as your physical health. Limit your time/exposure if it puts your mental health in jeopardy. In the end, this will literally blow over in the next few months and then it will be old news.

Panicking and stressing out will cause us to have immune flares and make us worse. Live your life and if you really need to, stay home if you’re able to. However, this Chargie has decided to live her life, take precautions and keep calm and carry on. According to John Hopkins more people are recovering, the virus is coming under control and things will turn around pretty soon.

Laura replied. To which she got comments like:

Most of that is correct however we’re not supposed to be taking anything to stimulate the auto immune system such as Elderberry and echinacea. 😀 plus you are supposed to call the county health department before going to a doctor or ER if you have coronavirus symptoms so that you do not contaminate their areas.
Rachel

It’s much more easily spread and has a higher mortality rate than the flu. Most of all, it requires a higher rate of medical intervention because of the related pneumonia. As a population, we have built up an immunity to strains of the flu. We also have vaccines and Tamiflu. We don’t have a population with immune systems built up against SARS much less COVID 19. I know people who are able to isolate, even with young children. I live with 2 college students who are now home & a husband in the military. I take immunosuppressant drugs… so I will be shocked if my family doesn’t get it.
I’m not panicked, but am realistic.
Bonita

Don’t touch anything

“Something small but thought I’d mention it” said Jenny. “If you go out to a place that has a kiosk for appointment check in, ordering a meal, etc… bring a stylus with you and use that instead of touching the screen. Bring and use your own pen when signing receipts, checking into doctor appointments, etc… in public”

Alyx adds: It’s been told by the CDC that up to 80% of Americans will catch one of two strains. Don’t freak out trying not to catch it, because it’s all but inevitable for us. Wash your hands, shower frequently, and stay indoors if you can.

Carry hand sanitizer everywhere you go and if you have to go to the store, use the wipes to clean the shopping carts. Says Barbara

Wash your hands alot, dont touch your face, and stay home if you are sick. For us chargies I would add, stay home unless you need to go out
Lora-lee

Take care of your mental health

Keep calm, and listen to the Moody Blues. That is what I will be doing as often as possible.
Irene

Maria comments: “Remember that panicking (and excessive worry on top of whatever illnesses/chronic conditions you have) weakens the immune system. Watch a comedy show, curl up with a book you’ve been meaning to read, watch a movie, do gentle stretches, cuddle your furbabies.”

Melody advises: ” Go for a hike ,enjoy nature, listen to the birds, look for signs of spring, and new beginnings. Breath in the fresh air and be in this moment” This is obviously only possible if you live in an area that is not in complete lockdown.

“Focus on what you can control. Helping others feels good so maybe buy generic (or other cost saving measures) and make a donation to the food bank. Try to limit exposure to the news. “
Tammie

Do you have any tips to share? Would love to read them in the comments.

Stay safe everyone

March 15, 2020March 14, 2020

Stuck at home? 12 tips to not go stir crazy

Many coutries around the world are ordering their citizens to stay home due to the coronavirus outbreak. Many people have never been homebound and have no idea what they are supposed to do now.

This is a Facebook post my friend Ami wrote, and I wanted to share it here for all of you to see.

What to do when you’re stuck at home

Stuck at home? Already going stir crazy? I can help with that.
All y’all freaking out about self isolating and being stuck at home 24/7: welcome to my world. This has been my life for the past 9 years. Maybe after the crisis is over, more of y’all will come visit me, more often? (Riiiiiight)

12 tips so you don’t go crazy at home

Anyway:

•If you have a yard, get a comfy chair and shade and Enjoy it! Being outdoors, helps to make being home feel less confining. Even the simplest things like watching anoles, squirrels, birds, bugs, clouds, etc. Seeing their freedom to move and run is joyous.

•Start a garden! Digging in the dirt helps to get frustration out, while creating something beautiful, or food to eat is satisfying as all hell.

•Get CRAFTY! Always wanted to learn how to create something? Now you can YouTube ALL THE VIDEOS on how to do something you have always wanted to do! Order or brave the stores for things you need (make sure to disinfect yourself and items) and get crazy!

•play with your animals. This passes the time in ways that you both get joy out of!

•Time to PURGE! This is a great time to finally tackle that closet, spare room, or your whole house. Get items ready to donate or box away for a garage sale once the pandemic passes.

•Spring clean! I mean… it is about that time anyway, right? Get into those crevices you normally gloss over, because of whatever reason.

•Binge watch shows you’ve been meaning to catch up on. In this day and age, there are tons of streaming services to choose from.

•Read! This speaks for itself. There are tons of worlds out there to immerse yourself in.

•Too lonely? Time to make some calls! Interact via whatever app you want for video calls, texting, actual *gasp!* phone calls, etc. I bet your family would love to hear from you.

•Nap! Now you can catch up on some much needed sleep.

•Meal plan! Made a few big batches of food and separate to freeze for later consumption. Also, you can do this and see if any of your friends/family are in need of some help, regarding mealtimes.

•Pamper yourself! Indulge in that bubble bath with candles and whatever you want to relax! Paint your nails. Learn and experiment with different hair/makeup etc. Just have fun!

I think that is it, for now. I can’t always do a lot of these things, but I think you all will enjoy it!

Ami

Ami has been disabled for six years with DDD, herniated and bulged discs, spinal stenosis, severe spinal arthritis, and severe sciatica.

She also has PCOS, Endo, kidney disease, pleurisy, open heart surgery, COPD, PTSD, Carpal Tunnel, and manic depression. Creating this photo took a weeks worth of spoons away from her, but she wanted to showcase her passion. She was a Fire Performer, prior to becoming too disabled to do it any further.

Ami is admin of the Unchargeables support group.