My name is Heather, and I am currently 30 years old. I suffer from Chronic Pelvic Pain, some chronic bilateral knee pain, IBS-C (C for constipation), migraines, and worst of all, Chiari Malformation. My Chiari is not formally diagnosed yet, but the MRI evidence and symptoms are there.
My Chronic Pelvic Pain started when I was still 26 and still Active Duty Army. No cause was ever found, despite extensive work-up. My knee pain also started in the Army while I was 22. My right knee has a partial ACL tear, and my left knee has some early degenerative arthritis, but that didn’t start until 2 years later. My IBS and migraines started in my teens. My Chiari symptoms likely started in the summer of 2013 when I was around 28 (my birthday is in the middle of summer).
My migraines weren’t responding to Excedrin as well as they did before, but it wasn’t until after I was medically retired in early 2014 that I had imaging done on my brain and the cerebellar tonsillar ectopia was found. They haven’t diagnosed is as Chiari Malfomation because most medical providers still go strictly by the old measurement criteria. I finally got my doctor to put in a referral for me to see a specific specialist, so hopefully I can find better treatment options.
I still try to do what I can despite my symptoms, including fun things like attending a Like A Storm concert last night. I knew what to do ahead of time so that I could enjoy the whole night… and yes, I do have a jar with spoons in it on one of my necklaces there. I also made a small poster for the concert last night too. Didn’t hold it up, as it was a small venue, plus I don’t care for too much extra attention, but I did at least get my husband to take a pic of me holding it up before the show.