Have you ever had a day when you just stared off into space? Not staring and thinking deep thoughts about your future, but empty. Random thoughts floating around occasionally, but…
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Ehlers-Danlos syndrome (EDS)Spoonie Stories
But You Don’t Look Sick By: Laura Sylvester
by Sharilynn September 27, 2017Do not judge a girl by what you can see, She may be fighting for her Life from an incurable genetic disease. She could be a girl suffering with chronic pain…
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Chiari Malformation
Rare Disease Spotlight Series: Chiari Malformation
by Sharilynn September 27, 2017As a new feature, we’re going to start a regular blog highlighting some of the rarer diseases in our community. For our first post, we’ll be talking about Chiari malformation. …
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Wow! Has it really been three months since my Total Abdominal Hysterectomy and Bilateral salpingo oophorectomy? It’s hard to believe it’s been that long! I’ve been on a roller-coaster for…
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Let’s talk about Doctors. Recently I called to schedule my yearly appointment with my Neurosurgeon to make sure my shunt is ok. Nothing new, call the office, get an appointment…
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Fibromyalgia (FM)Spoonie StoriesSpoonie Tips
How Mindy’s Fibromyalgia Is Affected By Stress
by Sharilynn August 7, 2017Hello… My name is Mindy. I am 58 years old and I was diagnosed with Fibromyalgia five years ago. I said that I would be happy to write…
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Celiac diseaseEhlers-Danlos syndrome (EDS)IllnessesSpoonie Stories
Emily: Day of Determination at the Dunes with Ehlers-Danlos Syndrome
by Chuck Dawson August 3, 2017It was a windy day, but so beautiful out on Lake Michigan. However, I really tested my body’s ability to move that day. First, I want to tell you a…
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Well, here we are 2 months post-op. It’s hard to believe I made it this far. Medical stuff has become a little much and I feel overwhelmed by a lot…
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Well, it’s been about 6 weeks since my Total Hysterectomy and Bilateral salpingo oophorectomy. I meant to post this sooner but as we both know life gets in the way.…
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Recently FaceBook notified me that I had one of the “Friendiversary” videos to view. I apparently have been FaceBook friends with one of the sweetest women I know for eight…
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